Mason County News
Weather Fair 81.0°F (47%)
Helping Hannah Find a Cure
Wednesday, August 6, 2014 • Posted August 6, 2014

We would like to invite you to Hannah’s Hope for a CURE 5k Walk/Run on October 25, 2014. All donations raised will go to Rettsyndrome.org for Rett Syndrome Research in honor of Hannah Joy Hooks. Hannah Hooks is the daughter of Denay Hooten Hooks and Sam Hooks. She was born on March 30, 2012, and diagnosed with a neurological disorder called Rett Syndome in December of last year.

Rett syndrome is a rare genetic postnatal neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake.

Since Hannah’s diagnosis, friends and family have been raising funds and awareness for Rett Syndrome research. Rett Syndrome is possibly REVERSIBLE and researchers are making strides everyday towards a cure and treatment.

Along with the 5k Walk/Run we will also be having a food, a kid’s race, a silent auction and a raffle. An event website will be available soon so you can register for the race and/or participate in a sponsorship.

Please come join us and be a part of finding a CURE and changing the lives of all of the girls/women living with Rett Syndrome.

This article has been read 94 times.
Comments
Readers are solely responsible for the content of the comments they post here. Comments do not necessarily reflect the opinion or approval of Mason County News. Comments are moderated and will not appear immediately.
Comments powered by Disqus