We would like to invite you to Hannah’s Hope for a CURE 5k Walk/Run on October 25, 2014. All donations raised will go to Rettsyndrome.org for Rett Syndrome Research in honor of Hannah Joy Hooks. Hannah Hooks is the daughter of Denay Hooten Hooks and Sam Hooks. She was born on March 30, 2012, and diagnosed with a neurological disorder called Rett Syndome in December of last year.
Rett syndrome is a rare genetic postnatal neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child’s life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake.
Since Hannah’s diagnosis, friends and family have been raising funds and awareness for Rett Syndrome research. Rett Syndrome is possibly REVERSIBLE and researchers are making strides everyday towards a cure and treatment.
Along with the 5k Walk/Run we will also be having a food, a kid’s race, a silent auction and a raffle. An event website will be available soon so you can register for the race and/or participate in a sponsorship.
Please come join us and be a part of finding a CURE and changing the lives of all of the girls/women living with Rett Syndrome.